Janis Sherwood, of Vista, Calif., is scheduled to leave today in a Class C motorhome on a cross-country road trip to raise public awareness about a rare genetic disease (ALD – or adrenoleukodystrophy) that killed her 8-year-old son, according to an article by Renee Ramsey in the North (San Diego) County Times.
“My son was so courageous during his illness,” Sherwood said. “I felt that if he could be that brave, then I can have the courage to reach out to others.”
Read full article here.
For more information about ALD, click here.
Photo: Janis Sherwood, the mother who started the nonprofit organization Fight ALD Illness Through Education, stands by the donated recreational vehicle that she plans to drive across the United States to raise awareness about the disease in Escondido on Saturday. Hayne Palmour IV / North County Times staff photographer